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GADA Congratulates Dr. Maral Ouzounian, New Chief of Cardiovascular Surgery, UHN, Toronto

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Congratulations to Dr. Maral Ouzounian for her recent appointment as the new Chief of Cardiovascular Surgery at Peter Munk Cardiac Centre, University Health Network in Toronto, Ontario.

Dr. Ouzounian is the Chair of GADA Canada’s Professional Advisory Board and we work together to promote, develop and establish numerous aortic research programs. Dr. Ouzounian’s focus on improving surgical care and outcomes for those with aortic disease and those with genetic aortic disorders is essential to the long-term health of patients.

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2021 Year in Review

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As we wrap up the year, with Christmas and the New Year right around the corner, we take a moment to look back on 2021 with pride for all that we achieved towards our mission and gratitude for the support from our members and volunteers.

This year, GADA received its largest grant from the Temerty Foundation to support a five-year strategic plan for growth, re-structuring and technology to achieve our increasing program capacity. We remain immensely grateful to the Temerty Foundation for their continued and growing support for GADA’s cause.

This funding made it possible to for GADA to continue funding the international Montalcino Aortic Consortium (MAC), $261,700 for the expansion of the global patient registry for research of heritable thoracic aortic disorders.

Through this year, we continued to follow COVID-19 precautionary measures while carrying out our programs virtually to promote research, education, awareness and facilitate support activities and connections between patients in different locations.

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Tick, Tick...Boom! film offers opportunity to raise awareness of aortic dissection and genetic aortic disorders

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On November 19, 2021 Netflix released the highly anticipated movie Tick, Tick...BOOM, a dynamic biography about the life of Jonathan Larson.

Larson, the brilliant composer of the Broadway hit RENT, died at age 35, from a misdiagnosed aortic dissection believed to be caused by his undiagnosed Marfan Syndrome.

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2020 News Highlights & Holiday Wishes from all of us at GADA Canada

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GADA Canada would like to wish each and every one of our members a holiday season that is joyous and restorative.
We hope you are able to spend the holidays in good health and good spirits despite the unusual circumstances that we find ourselves in this year.

Every year we take time to acknowledge the strides that we have made in our mission to represent the interests of our membership.

This year, in the context of Covid-19 things have been challenging. However, just like you do every day, we have continued to push ahead.

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Liz Martin's fundraiser for GADA Canada

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Say hello to Liz (@elizabethelsie7).

In preparation for her first cardiac surgery, Liz has been connecting with others with Marfan Syndrome and is raising money to support GADA’s work.

GADA is truly grateful to Liz and all her supporters who have generously contributed to to her fundraiser!

Here is Liz’s story…

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GADA Canada Awards $ 205,000 in Research Grants

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GADA Canada is proud to announce that it is awarding $205,000 to three physicians/scientists as part of its 2019 Research Grant Award program.

GADA's commitment to promote new research over the last thirty years, has greatly improved our knowledge of the different genetic aortic disorders and has also led to increasingly successful treatment outcomes for affected individuals. Read More

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Dr. Maral Ouzounian, Cardiovascular Surgeon, named Chair of Professional Advisory Board

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The Genetic Aortic Disorders Association Canada (GADA Canada) is pleased to announce that Dr. Maral Ouzounian, MD, PhD, FRCSC, is the newly appointed Chair of its Professional Advisory Board. Dr. Ouzounian, who has served on the Professional Advisory Board since 2015, is a cardiac and aortic surgeon at the Peter Munk Cardiac Centre, and Assistant Professor of Surgery at the University of Toronto.

Dr. Ouzounian replaces Dr. Dianna Milewicz, MD, PhD, University of Texas Medical School at Houston, who served as Chair of the Professional Advisory Board since 2012.

ACTA2 & MSMDS Conference, Friday, May 24th and Saturday, May 25th 2019, Boston

ACTA2 Alliance in collaboration with the Massachusetts General Hospital invite you to join the

ACTA2 & MSMDS Annual Conference

Friday, May 24th and Saturday, May 25th 2019

MASSACHUSETTS GENERAL HOSPITAL
SIMCHES RESEARCH BUILDING
185 CAMBRIDGE ST, BOSTON, MA 02114​

For more details & to register Click Here

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15th Annual JASON ‘RUFFY’ KEITH Memorial Raises over $ 2,000 In Pool Tournament Fundraiser

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For the 15th year, in April 2018, a Memorial Pool Tournament fundraiser was organized for Jason ‘Ruffy’ Keith by his closest family and friends at Dooly’s in Moncton, NB.

Jason’s family continues to host this event year-after-year to keep Jason’s memories and friends close & more importantly to help increase the awareness of the terrible disorder – Jason passed away in 2003 from Marfan syndrome.

Yet again, the turnout of supporters was exceptional! There were approximately 30 pool players & the place was full of family &friends. The event raised over $ 2,000 in memory of beloved Jason Keith. These proceeds were kindly donated to GADA Canada, Thank you!